My MS/HSCT Journey

I am starting to see improvements. They are small but I can lift my arm a little more and my leg. I am so glad I am here. Also, I learned I suck at editing. 😭  

  I can move my leg a little and my arm but not as much as I want. I am hoping I will be back to normal very soon because this really sucks. The TV keeps showing commercials of fast food.  I spent months brainwashing myself that all this food is poison and now the same commercial keel playing every 2 minutes. I am at least greatful I have Kurt. He has stuck by my side and has offered me much needed conversation. 

My symptoms keep getting worse. Yesterday I could barely walk. I told my husband yesterday that I was seriously considering going to the hospital in Oregon. I don't trust the doctors here, especially after one told me she couldn't treat me.  So today Kurt took me to the hospital. We didn't have a wheelchair and I couldn't walk so Kurt wheeled to the car in my office chair. Along the way I tried to keep upright in the car which was difficult because my right side was so weak and I kept falling toward the door. I used my left hand to hold onto the seat belt to keep me upright when we hit bumps or when we turned.  When we got to the hospital Kurt got a wheel chair and took me inside. They brought us back and we waited for the doctor. All the staff were extremely professional and nice. They got ahold of neurologists and sent me off to get an MRI right away. Finally a doctor came in and told us that I had a large exasperation and they admitted me. The took me to another room...

  Video says it all.

  So what do you do if you think your having a relapse? This guy in the next video is awesome. Wish someone would have told me this and also to make sure your neurologist takes it seriously! I feel like mine didn't or thought it was an exasperation.

  Monday, July 12th, 2021            My 2nd episode. Woke up fine. Within minutes noticed my leg was super weak. My arm was super weak. I couldn't walk On my right leg I couldn't lift my right arm above my head without extra strain. I also experienced facial numbness. The weakness lasted 3 and 1/2 hours. I was finally able to walk and able to lift my arm above my head but my arm and my leg were still extremely weak.  Tuesday       I woke up and my right side is still incredibly weak and I'm still experiencing facial numbness. It is not like Monday morning though.  Wednesday      Seen my primary doctor ad he ordered blood tests, a urine sample to rule out infection, and an MRI. I am getting really tired and weak if I stand too long and I can barely write my name.. I am taking this day to rest. I am very tired and weak. Friday      I can't believe it but I am even weaker than yesterday. If ...

     Today I got my first dose of the vaccine. I feel fine just tired, nothing I can't fight through. I started to have a slight headache but I drank some water and it went away. I was super nervous about getting but glad I did.      I am supposed to start Vulmerity after my second dose. My neurologist wants me to get the vaccine first since the medication is a immunosuppressant.      I'm due for my 2nd dose July 30th. I'm ready to start the new medication since the Copaxone isn't working. I am still taking it for the time being because it might be offering some protection.

     Today I went to the clinic for a walking appointment because I think I might be having a flare.      The doctor walked in and told me I should go to the ER because I might be having a stoke. I told her I have MS and that I was pretty sure it was a flare. She then told me she didn't feel comfortable treating me because she didn't know much about multiple sclerosis.      I am at least glad she was honest instead of us wasting each other's time. I am also extremely disappointed. I have never been refused treatment due to having an illness but she did move up my doctors appointment, so that's a plus.