July 18, 2021 - Confirmed Relapse MRI Images

My symptoms keep getting worse. Yesterday I could barely walk. I told my husband yesterday that I was seriously considering going to the hospital in Oregon. I don't trust the doctors here, especially after one told me she couldn't treat me.

So today Kurt took me to the hospital. We didn't have a wheelchair and I couldn't walk so Kurt wheeled to the car in my office chair. Along the way I tried to keep upright in the car which was difficult because my right side was so weak and I kept falling toward the door. I used my left hand to hold onto the seat belt to keep me upright when we hit bumps or when we turned.

When we got to the hospital Kurt got a wheel chair and took me inside. They brought us back and we waited for the doctor. All the staff were extremely professional and nice. They got ahold of neurologists and sent me off to get an MRI right away. Finally a doctor came in and told us that I had a large exasperation and they admitted me.

The took me to another room and we were informed that I would be admitted for 5 days. They got me all set up and brought me a bed side commode. Kurt stayed with me.

I had never stayed overnight in the hospital before except when my mom passed away but never because of a personal injury or illness. They are going to start me on IV steriods to prevent further progression of inflammation from the lesion. Hopefully I can get back to normal soon!

This lesion is measured as 4.0 X 2.6 CM which is considered large. It caused right-sided paralysis. It is the large white circle on the right in each image.

Comments

September 1, 2021 - Tummy Trouble

So this morning I was able to get out of bed and use the bathroom before the spasm hit. It was a nice change of pace. I am praying that this means things are getting better but if they are it means the muscle spasms were influenced by my menstrual cycle. I am glad in the sense that this would mean that I wouldn't have them as often but I am disappointed that I will dread my period even more now. Only time will tell for sure. I stopped taking the baclofen. I didn't take it at all yesterday which proves that it wasn't doing anything. I have been working to improve enough to return to work. I miss being independent as well as not having to rest like an 80-year-old. In fact, I think an 80-year-old would have more stamina. Having MS isn't fair. I pray the Tecfidera is working. If not, it would mean my MS is aggressive and that I would need to take some serious measures because I do...

September 30, 2021 - To The Bone

I am so sick of posting new symptoms but I am about to post another one. Today it's cold in the house and I am borderline freezing but it feels so much better than the heat I have had to deal with I'm the summer so I am appreciating the cool air in the house. My fingers are pretty cold and so are my feet but my feet are always ice cubes even with socks on. Then I notice the pain in my shoulder and there is a new pain in my arms. It's deep and feels like it's coming from my bones. I have never had a dull deep ache like this before. It hurts and is uncomfortable. I think it might be from the cold? The pain in my shoulder I have had for a while now. I was told it could be caused by a muscle being pinched and inflamed. I am waiting to go to the doctor so I can talk to him about it. I think it was caused by the dystonia. A few times I had those attacks it felt like I was going to pull my arm out of the socket. It...

September 14, 2021 - Another Relapse, New meds, and B Cell Therapy...

Today I called my neurologist and told him I was experiencing left-sided weakness in my leg an foot. On my visit on the 3rd, I expressed that I was having disoriented and clumsiness in my left arm. He suggested it might be caused by fear of having a relapse on my strong side. Today he told me that it's likely another relapse and prescribed me prednisone. 50 pills for 3 days and no that's not a typo. I started them this morning. I have been so tired and can't type very well so I'm going to close for the day. I'll explain everything in more detail when I am feeling stronger. Thank God for my husband. Oh, and my insurance rejected Vulmerity due to a lack of information on the appeal from my neurologist's office. He wants to switch me to a more effective infusion medication called Rituximab. My neurologist wants me to try rituximab infusions since my MS is being aggressive. It's used alongside cancer treatments ...

My MS/HSCT Journey

Search This Blog