Skip to main content

July 18, 2021 - Confirmed Relapse MRI Images

My symptoms keep getting worse. Yesterday I could barely walk. I told my husband yesterday that I was seriously considering going to the hospital in Oregon. I don't trust the doctors here, especially after one told me she couldn't treat me. 

So today Kurt took me to the hospital. We didn't have a wheelchair and I couldn't walk so Kurt wheeled to the car in my office chair. Along the way I tried to keep upright in the car which was difficult because my right side was so weak and I kept falling toward the door. I used my left hand to hold onto the seat belt to keep me upright when we hit bumps or when we turned. 

When we got to the hospital Kurt got a wheel chair and took me inside. They brought us back and we waited for the doctor. All the staff were extremely professional and nice. They got ahold of neurologists and sent me off to get an MRI right away. Finally a doctor came in and told us that I had a large exasperation and they admitted me.

The took me to another room and we were informed that I would be admitted for 5 days. They got me all set up and brought me a bed side commode. Kurt stayed with me. 

I had never stayed overnight in the hospital before except when my mom passed away but never because of a personal injury or illness. They are going to start me on IV steriods to prevent further progression of inflammation from the lesion. Hopefully I can get back to normal soon! 


This lesion is measured as 4.0 X 2.6 CM which is considered large. It caused right-sided paralysis. It is the large white circle on the right in each image. 













 













Comments

Post a Comment

Popular posts from this blog

The Mobilization to the Transplant - 7/24/23 to 9/15/23

 7/24/2023 We are going to leave for San Diego soon and my anxiety is starting to surface. Today I feel impatient. I just want to get this going. I woke up last night around 2 AM with my arm, from elbow to wrist feeling like I had a rubber band wrapped around it. I don’t know why this happens, but it seems like it happens most when I am really tired, or I don’t eat well earlier that day. It might be an incentive to be better at rest and food intake, but I hate it. I wake up and I am unable to get back to sleep leaving me more exhausted until regardless of the symptoms I finally fall asleep. Honestly, I am hoping a lot of these things will improve or disappear completely with HSCT but I am not naive enough to rely on it. I will just be happy if the MS goes into remission. I would love to wake up without worrying that a new symptom will mean an MS relapse. I am exhausted of MS and I haven’t had it as long as so many others have. 7/26/2023 - Hilton, Gun shots??? Tomorrow is th...
Post a Comment
Read more

June 3, 2020 - Hangover?

June 3 - 5, 2020        I woke up and I just didn’t feel right. I feel weak and uncoordinated. I drank last night so maybe it's just a hangover. I usually drink every night so it could be that I'm dehydrated. I can push through it and I am sure tomorrow I will feel better. I will hydrate and if that doesn’t work, maybe have a hair of the dog. I need to quit drinking. This is ridiculous. Symptoms   Weakness in both legs and arms Poor balance and coordination  Uncomfortable  Trouble walking and moving Tired 
Post a Comment
Read more

Dr. Burt's Clinical Trial for RRMS Part 4 - Better Late than Never

Today was my consultation with Dr. Burt. I kept thinking at least you are going to meet him. You are going to meet the pioneer of HSCT. I never knew what star struck was but I was immediately hit with it and my mind went blank.  He was so passionate about his work. You could tell by how he explained everything in such understandable detail. All the things I had learned about MS suddenly went blank and he turned into my new teacher. I listened intently as he explained HSCT and sudden platelet drop and soon he said something magical. He said he believed HSCT would benefit me. He accepted me as a patient and he even discussed my treatment with my MS specialist. I was floored. I was relieved. I was in such shock that when he asked me if I had any questions, my mind was empty. I had some questions but really wasn't ready.  Usually at appointments like these, I have a list of questions and at the end of the appointments, I go through each one quickly but this appointment I hadn't do...
Post a Comment
Read more