Skip to main content

September 15, 2020 - Lumbar Puncture

Today was my Lumbar Puncture and I didn't sleep at all. I was too anxious and nervous. Once we got to the hospital I was shaking because I was terrified. While Kurt and I were waiting I joked about just sneaking out but I wasn't kidding. I have to admit, when they called me back for the lumbar puncture I was holding back tears. In fact, there was a moment when I was seriously ready to bolt. Thank God Kurt was with me or I am sure I would have ran.

It was difficult walking with the nurse. Call me a whimp but never in my whole life have I ever wanted my grandmother so so much. 

The nurses were so nice. They told my husband he had to wait in the room next to mine while they put the needle in. It was separated by glass so he could see me. Because of the way I was lying, I couldn't see him so I just kept telling myself, reassuring myself that he was right there, I was in the hospital if anything went wrong, and that everything was going to be okay.

The nurses told me to lay on my left side and relax. They numbed the area and started to stick the needle in. At one point I felt a lot of pressure and a really sharp pain. I told them to stop and they stuck me with another needle and numbed the injection site more. 

Once they got the 5-inch needle in, they let my husband come back in with me while they got my spinal fluid. Then I was done and had to lie down for a little while.

My husband and a nurse had to help me to the car because I was very dizzy and tired. My adrenaline wore off and I was crashing. On the way home we kept my seat reclined and as soon as we got home I went straight to bed. My husband was amazing and left to get my favorite soup. I had a difficult time eating it because I couldn't lift my head but I managed. Then I went to sleep, which was much needed.



Comments

Popular posts from this blog

September 1, 2021 - Tummy Trouble

     So this morning I was able to get out of bed and use the bathroom before the spasm hit. It was a nice change of pace. I am praying that this means things are getting better but if they are it means the muscle spasms were influenced by my menstrual cycle.      I am glad in the sense that this would mean that I wouldn't have them as often but I am disappointed that I will dread my period even more now. Only time will tell for sure.      I stopped taking the baclofen. I didn't take it at all yesterday which proves that it wasn't doing anything.       I have been working to improve enough to return to work. I miss being independent as well as not having to rest like an 80-year-old. In fact, I think an 80-year-old would have more stamina.       Having MS isn't fair. I pray the Tecfidera is working. If not, it would mean my MS is aggressive and that I would need to take some serious measures because I do...

September 16, 2021 - Prednisone 50 Pills Per Day, 20MG for 3 Days , Update

     Today is the last day of oral steroids. I think they are helping because it doesn't seem like my symptoms have gotten worse however my left leg is weak, my left arm is recovering, my right side is recovering and movement or change in position is exhausting. I just keep hoping I will wake up and have all functions back but that is unfortunately not how this disease works.      Do you know how older people say they need to stop and rest? I now know exactly how that feels and it sucks! In my mind, everything seems normal but when it comes to the task itself my body refuses to accept the messages sent by my brain. My left leg refuses to move and it takes time for it to finally receive the message.      I like the steroids because I feel like they help so much except for some side effects. Heart racing, shortness of breath, darker facial hair, and brain fog/confusion are just to name a few. They're not so bad but do catch you off guard. I won...

September 17, 2021 - Embarrassing and Uncomfortable Moments

One wonderful thing about having MS is that you never know what to expect. Symptoms can come out of nowhere at any time, for any reason. That's why it is so important to keep your spirits high and to have a good sense of humor. Today I will share some of my own special moments. Hopefully, you find the humor in them as I do. I have to pee. Of course, urination is normal but because of all the fun medications I take, I pee about once or twice an hour. The medication makes me thirsty so I drink water all day. Also because of the relapses, I am unable to hold it in. My husband hurries me to the bathroom as fast as I will go, we struggle to pull down my underwear, and as soon as my butt hits the toilet I already have a study flow streaming. In the event I don't make it totally in time, I manage to leak a tiny bit. I won't complain. I could have no control and rely on depends. I could only imagine my husband and me dealing with that. Sometimes while I pee I try to look him in the...