May 17, 2021 - I Got Rear Ended

September 1, 2021 - Tummy Trouble

So this morning I was able to get out of bed and use the bathroom before the spasm hit. It was a nice change of pace. I am praying that this means things are getting better but if they are it means the muscle spasms were influenced by my menstrual cycle. I am glad in the sense that this would mean that I wouldn't have them as often but I am disappointed that I will dread my period even more now. Only time will tell for sure. I stopped taking the baclofen. I didn't take it at all yesterday which proves that it wasn't doing anything. I have been working to improve enough to return to work. I miss being independent as well as not having to rest like an 80-year-old. In fact, I think an 80-year-old would have more stamina. Having MS isn't fair. I pray the Tecfidera is working. If not, it would mean my MS is aggressive and that I would need to take some serious measures because I do...

September 30, 2021 - To The Bone

I am so sick of posting new symptoms but I am about to post another one. Today it's cold in the house and I am borderline freezing but it feels so much better than the heat I have had to deal with I'm the summer so I am appreciating the cool air in the house. My fingers are pretty cold and so are my feet but my feet are always ice cubes even with socks on. Then I notice the pain in my shoulder and there is a new pain in my arms. It's deep and feels like it's coming from my bones. I have never had a dull deep ache like this before. It hurts and is uncomfortable. I think it might be from the cold? The pain in my shoulder I have had for a while now. I was told it could be caused by a muscle being pinched and inflamed. I am waiting to go to the doctor so I can talk to him about it. I think it was caused by the dystonia. A few times I had those attacks it felt like I was going to pull my arm out of the socket. It...

September 14, 2021 - Another Relapse, New meds, and B Cell Therapy...

Today I called my neurologist and told him I was experiencing left-sided weakness in my leg an foot. On my visit on the 3rd, I expressed that I was having disoriented and clumsiness in my left arm. He suggested it might be caused by fear of having a relapse on my strong side. Today he told me that it's likely another relapse and prescribed me prednisone. 50 pills for 3 days and no that's not a typo. I started them this morning. I have been so tired and can't type very well so I'm going to close for the day. I'll explain everything in more detail when I am feeling stronger. Thank God for my husband. Oh, and my insurance rejected Vulmerity due to a lack of information on the appeal from my neurologist's office. He wants to switch me to a more effective infusion medication called Rituximab. My neurologist wants me to try rituximab infusions since my MS is being aggressive. It's used alongside cancer treatments ...

My MS/HSCT Journey

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