August 28, 2021 - Why Did I Create This Blog, For Anyone Who Isn't Me

So I decided to do this blog because it's an excellent way to record my symptoms, thoughts, and my medical information/ experiences during this crazy Multiple Sclerosis journey. There might be times I have difficulty typing, writing, or talking but this blog gives me the option of all the above plus video which is amazing. By documenting everything, it makes it easier to inform my doctors as well as remind me of the things I have experienced. It will also provide an outlet, a way to vent and explain the ups and downs of living life with this disease.

I made this blog for me - but I understand that this blog is on the internet and anyone can view it. I hope that if someone else can benefit from my story, maybe just by knowing they aren't alone or learning more about this disease that maybe I can be a part of bringing awareness to Multiple Sclerosis.

Comments

September 30, 2021 - To The Bone

I am so sick of posting new symptoms but I am about to post another one. Today it's cold in the house and I am borderline freezing but it feels so much better than the heat I have had to deal with I'm the summer so I am appreciating the cool air in the house. My fingers are pretty cold and so are my feet but my feet are always ice cubes even with socks on. Then I notice the pain in my shoulder and there is a new pain in my arms. It's deep and feels like it's coming from my bones. I have never had a dull deep ache like this before. It hurts and is uncomfortable. I think it might be from the cold? The pain in my shoulder I have had for a while now. I was told it could be caused by a muscle being pinched and inflamed. I am waiting to go to the doctor so I can talk to him about it. I think it was caused by the dystonia. A few times I had those attacks it felt like I was going to pull my arm out of the socket. It...

September 1, 2021 - Tummy Trouble

So this morning I was able to get out of bed and use the bathroom before the spasm hit. It was a nice change of pace. I am praying that this means things are getting better but if they are it means the muscle spasms were influenced by my menstrual cycle. I am glad in the sense that this would mean that I wouldn't have them as often but I am disappointed that I will dread my period even more now. Only time will tell for sure. I stopped taking the baclofen. I didn't take it at all yesterday which proves that it wasn't doing anything. I have been working to improve enough to return to work. I miss being independent as well as not having to rest like an 80-year-old. In fact, I think an 80-year-old would have more stamina. Having MS isn't fair. I pray the Tecfidera is working. If not, it would mean my MS is aggressive and that I would need to take some serious measures because I do...

September 17, 2021 - Embarrassing and Uncomfortable Moments

One wonderful thing about having MS is that you never know what to expect. Symptoms can come out of nowhere at any time, for any reason. That's why it is so important to keep your spirits high and to have a good sense of humor. Today I will share some of my own special moments. Hopefully, you find the humor in them as I do. I have to pee. Of course, urination is normal but because of all the fun medications I take, I pee about once or twice an hour. The medication makes me thirsty so I drink water all day. Also because of the relapses, I am unable to hold it in. My husband hurries me to the bathroom as fast as I will go, we struggle to pull down my underwear, and as soon as my butt hits the toilet I already have a study flow streaming. In the event I don't make it totally in time, I manage to leak a tiny bit. I won't complain. I could have no control and rely on depends. I could only imagine my husband and me dealing with that. Sometimes while I pee I try to look him in the...

My MS/HSCT Journey

Search This Blog