Skip to main content

Follow Up Appointment with my MS Specialist

Today I had a virtual appointment with my MS specialist. She wants me to do outpatient physical therapy because she feels it is important for my recovery from my relapse. She is going to provide me a referral as well as a prescription for a cane. 

I asked her if the shringrix shot had anything to do with it and she told me, "It is hard to tell. It may be a coincidence because studies haven't found vaccines, including the covid vaccine, to be associated with relapses. However, sometimes if people feel poorly after a vaccine their old symptoms may get worse." She also suggested that we can try to move up my next Rituxan infusion so long as insurance approves.

I guess I will talk more about it with her at my next appointment.


Comments

Popular posts from this blog

The Mobilization to the Transplant - 7/24/23 to 9/15/23

 7/24/2023 We are going to leave for San Diego soon and my anxiety is starting to surface. Today I feel impatient. I just want to get this going. I woke up last night around 2 AM with my arm, from elbow to wrist feeling like I had a rubber band wrapped around it. I don’t know why this happens, but it seems like it happens most when I am really tired, or I don’t eat well earlier that day. It might be an incentive to be better at rest and food intake, but I hate it. I wake up and I am unable to get back to sleep leaving me more exhausted until regardless of the symptoms I finally fall asleep. Honestly, I am hoping a lot of these things will improve or disappear completely with HSCT but I am not naive enough to rely on it. I will just be happy if the MS goes into remission. I would love to wake up without worrying that a new symptom will mean an MS relapse. I am exhausted of MS and I haven’t had it as long as so many others have. 7/26/2023 - Hilton, Gun shots??? Tomorrow is th...

Dr. Burt's Clinical Trial for RRMS Part 4 - Better Late than Never

Today was my consultation with Dr. Burt. I kept thinking at least you are going to meet him. You are going to meet the pioneer of HSCT. I never knew what star struck was but I was immediately hit with it and my mind went blank.  He was so passionate about his work. You could tell by how he explained everything in such understandable detail. All the things I had learned about MS suddenly went blank and he turned into my new teacher. I listened intently as he explained HSCT and sudden platelet drop and soon he said something magical. He said he believed HSCT would benefit me. He accepted me as a patient and he even discussed my treatment with my MS specialist. I was floored. I was relieved. I was in such shock that when he asked me if I had any questions, my mind was empty. I had some questions but really wasn't ready.  Usually at appointments like these, I have a list of questions and at the end of the appointments, I go through each one quickly but this appointment I hadn't do...

September 30, 2021 - To The Bone

     I am so sick of posting new symptoms but I am about to post another one. Today it's cold in the house and I am borderline freezing but it feels so much better than the heat I have had to deal with I'm the summer so I am appreciating the cool air in the house.      My fingers are pretty cold and so are my feet but my feet are always ice cubes even with socks on. Then I notice the pain in my shoulder and there is a new pain in my arms. It's deep and feels like it's coming from my bones. I have never had a dull deep ache like this before. It hurts and is uncomfortable. I think it might be from the cold?      The pain in my shoulder I have had for a while now. I was told it could be caused by a muscle being pinched and inflamed. I am waiting to go to the doctor so I can talk to him about it. I think it was caused by the dystonia. A few times I had those attacks it felt like I was going to pull my arm out of the socket.      It...