Follow Up Appointment with my MS Specialist

Today I had a virtual appointment with my MS specialist. She wants me to do outpatient physical therapy because she feels it is important for my recovery from my relapse. She is going to provide me a referral as well as a prescription for a cane.

I asked her if the shringrix shot had anything to do with it and she told me, "It is hard to tell. It may be a coincidence because studies haven't found vaccines, including the covid vaccine, to be associated with relapses. However, sometimes if people feel poorly after a vaccine their old symptoms may get worse." She also suggested that we can try to move up my next Rituxan infusion so long as insurance approves.

I guess I will talk more about it with her at my next appointment.

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September 1, 2021 - Tummy Trouble

So this morning I was able to get out of bed and use the bathroom before the spasm hit. It was a nice change of pace. I am praying that this means things are getting better but if they are it means the muscle spasms were influenced by my menstrual cycle. I am glad in the sense that this would mean that I wouldn't have them as often but I am disappointed that I will dread my period even more now. Only time will tell for sure. I stopped taking the baclofen. I didn't take it at all yesterday which proves that it wasn't doing anything. I have been working to improve enough to return to work. I miss being independent as well as not having to rest like an 80-year-old. In fact, I think an 80-year-old would have more stamina. Having MS isn't fair. I pray the Tecfidera is working. If not, it would mean my MS is aggressive and that I would need to take some serious measures because I do...

September 30, 2021 - To The Bone

I am so sick of posting new symptoms but I am about to post another one. Today it's cold in the house and I am borderline freezing but it feels so much better than the heat I have had to deal with I'm the summer so I am appreciating the cool air in the house. My fingers are pretty cold and so are my feet but my feet are always ice cubes even with socks on. Then I notice the pain in my shoulder and there is a new pain in my arms. It's deep and feels like it's coming from my bones. I have never had a dull deep ache like this before. It hurts and is uncomfortable. I think it might be from the cold? The pain in my shoulder I have had for a while now. I was told it could be caused by a muscle being pinched and inflamed. I am waiting to go to the doctor so I can talk to him about it. I think it was caused by the dystonia. A few times I had those attacks it felt like I was going to pull my arm out of the socket. It...

September 14, 2021 - Another Relapse, New meds, and B Cell Therapy...

Today I called my neurologist and told him I was experiencing left-sided weakness in my leg an foot. On my visit on the 3rd, I expressed that I was having disoriented and clumsiness in my left arm. He suggested it might be caused by fear of having a relapse on my strong side. Today he told me that it's likely another relapse and prescribed me prednisone. 50 pills for 3 days and no that's not a typo. I started them this morning. I have been so tired and can't type very well so I'm going to close for the day. I'll explain everything in more detail when I am feeling stronger. Thank God for my husband. Oh, and my insurance rejected Vulmerity due to a lack of information on the appeal from my neurologist's office. He wants to switch me to a more effective infusion medication called Rituximab. My neurologist wants me to try rituximab infusions since my MS is being aggressive. It's used alongside cancer treatments ...

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