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September 30, 2021 - To The Bone

    I am so sick of posting new symptoms but I am about to post another one. Today it's cold in the house and I am borderline freezing but it feels so much better than the heat I have had to deal with I'm the summer so I am appreciating the cool air in the house.

    My fingers are pretty cold and so are my feet but my feet are always ice cubes even with socks on. Then I notice the pain in my shoulder and there is a new pain in my arms. It's deep and feels like it's coming from my bones. I have never had a dull deep ache like this before. It hurts and is uncomfortable. I think it might be from the cold?

    The pain in my shoulder I have had for a while now. I was told it could be caused by a muscle being pinched and inflamed. I am waiting to go to the doctor so I can talk to him about it. I think it was caused by the dystonia. A few times I had those attacks it felt like I was going to pull my arm out of the socket.

    It sucks because I don't want to make a big deal about it. Odds are they are going to prescribe more medication and pain pills. I already take enough and I am not willing to take opioids. Too many people in my family ended up addicted to them and I won't risk it. I like to think straight thank you very much.

    I can't wait to get off the medication for the dystonia because the medication makes it hard to sleep and my eyes are dilated right after I take them. I don't like them but it's better than those hemidystonia attacks. 

    I went to physical therapy yesterday. She sees weakness in my right hip and noticed my poor balance. She gave me exercises and Kurt is going to help me with some of them. I'm glad. Anything to help me get back to normal faster.

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