December 18, 2020 - MS Medication Discussion

Today my neurologist and I discussed medication. He suggested two medications; Copaxone and Tecfidera. Since I was thinking of starting a family but have been some what undecided, we agreed on Copaxone.

I am going to have to get used to self administering an injection 3 times a week. In 6 months, June, I will have to do another MRI to make sure it is working. I hope it does Because I don't want to see the ugly side of MS. It's scary enough to know what I already know about it and I don't want to experience it worse than what I already have.

I am still having a hard time researching multiple sclerosis. I really don't want to know anymore about it because it scares the hell out of me with each new thing I do learn.

I am slowly making progress. I quit smoking. I am trying to be more active but going for walks. I am even researching diets and I'm going to quit drinking soon. I am trying. It sucks because it's all I think about and I am still figuring everything out.

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September 1, 2021 - Tummy Trouble

So this morning I was able to get out of bed and use the bathroom before the spasm hit. It was a nice change of pace. I am praying that this means things are getting better but if they are it means the muscle spasms were influenced by my menstrual cycle. I am glad in the sense that this would mean that I wouldn't have them as often but I am disappointed that I will dread my period even more now. Only time will tell for sure. I stopped taking the baclofen. I didn't take it at all yesterday which proves that it wasn't doing anything. I have been working to improve enough to return to work. I miss being independent as well as not having to rest like an 80-year-old. In fact, I think an 80-year-old would have more stamina. Having MS isn't fair. I pray the Tecfidera is working. If not, it would mean my MS is aggressive and that I would need to take some serious measures because I do...

September 30, 2021 - To The Bone

I am so sick of posting new symptoms but I am about to post another one. Today it's cold in the house and I am borderline freezing but it feels so much better than the heat I have had to deal with I'm the summer so I am appreciating the cool air in the house. My fingers are pretty cold and so are my feet but my feet are always ice cubes even with socks on. Then I notice the pain in my shoulder and there is a new pain in my arms. It's deep and feels like it's coming from my bones. I have never had a dull deep ache like this before. It hurts and is uncomfortable. I think it might be from the cold? The pain in my shoulder I have had for a while now. I was told it could be caused by a muscle being pinched and inflamed. I am waiting to go to the doctor so I can talk to him about it. I think it was caused by the dystonia. A few times I had those attacks it felt like I was going to pull my arm out of the socket. It...

September 17, 2021 - Embarrassing and Uncomfortable Moments

One wonderful thing about having MS is that you never know what to expect. Symptoms can come out of nowhere at any time, for any reason. That's why it is so important to keep your spirits high and to have a good sense of humor. Today I will share some of my own special moments. Hopefully, you find the humor in them as I do. I have to pee. Of course, urination is normal but because of all the fun medications I take, I pee about once or twice an hour. The medication makes me thirsty so I drink water all day. Also because of the relapses, I am unable to hold it in. My husband hurries me to the bathroom as fast as I will go, we struggle to pull down my underwear, and as soon as my butt hits the toilet I already have a study flow streaming. In the event I don't make it totally in time, I manage to leak a tiny bit. I won't complain. I could have no control and rely on depends. I could only imagine my husband and me dealing with that. Sometimes while I pee I try to look him in the...

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