Skip to main content

A Deflating Relapse

Today I went to the emergency room. I called my MS specialist and told the nurse that I thought I was having a relapse, who then relayed a message to my MS specialist. They told me that I needed to rule out an infection. I had an appointment today at the gyno so I asked them to test for a bladder infection or a UTI. I don't usually get bladder infections or UTIs but I figured it wouldn't hurt to check. It came up normal. 😔 I know that means I relapsed so I decided to go to the ER because they can give me prednisone. My last infusion was in April 2022. I should be okay since it's only been 4.5 months and these infusions should keep me safe for 6 months. However, several days ago I woke up feeling something was off. This all started on August 27th with hand weakness and trouble speaking out loud. On August 28th, the sensation in my right hand was off and weirdly numb. 

Currently, I am having a hard time staying focused on my school assignments. So, I have been reading out loud to help but I am stumbling over words. I am also having a hard time pronouncing words. Words that I have used millions of times. Over the last few days, these symptoms have gotten worse. I now have a hard time getting words out. I have difficulty talking. My tongue feels swollen, and it's difficult to speak. My right hand and arm are very clumsy and weak. This upsets me. How many times is MS going to affect my right side before I am completely unable to use it? I already have a difficult time writing. 

They are prescribing me an IV solu-Medrol of 1000 mg daily for 5 days. They want to admit me for 3 days and then re-assess.

I really believed the Ritxan was working so I am feeling very deflated. The only thing I can do is reach out to my MS Specialist to see what is next. This sucks.

Comments

Popular posts from this blog

The Mobilization to the Transplant - 7/24/23 to 9/15/23

 7/24/2023 We are going to leave for San Diego soon and my anxiety is starting to surface. Today I feel impatient. I just want to get this going. I woke up last night around 2 AM with my arm, from elbow to wrist feeling like I had a rubber band wrapped around it. I don’t know why this happens, but it seems like it happens most when I am really tired, or I don’t eat well earlier that day. It might be an incentive to be better at rest and food intake, but I hate it. I wake up and I am unable to get back to sleep leaving me more exhausted until regardless of the symptoms I finally fall asleep. Honestly, I am hoping a lot of these things will improve or disappear completely with HSCT but I am not naive enough to rely on it. I will just be happy if the MS goes into remission. I would love to wake up without worrying that a new symptom will mean an MS relapse. I am exhausted of MS and I haven’t had it as long as so many others have. 7/26/2023 - Hilton, Gun shots??? Tomorrow is th...

June 3, 2020 - Hangover?

June 3 - 5, 2020        I woke up and I just didn’t feel right. I feel weak and uncoordinated. I drank last night so maybe it's just a hangover. I usually drink every night so it could be that I'm dehydrated. I can push through it and I am sure tomorrow I will feel better. I will hydrate and if that doesn’t work, maybe have a hair of the dog. I need to quit drinking. This is ridiculous. Symptoms   Weakness in both legs and arms Poor balance and coordination  Uncomfortable  Trouble walking and moving Tired 

Dr. Burt's Clinical Trial for RRMS Part 4 - Better Late than Never

Today was my consultation with Dr. Burt. I kept thinking at least you are going to meet him. You are going to meet the pioneer of HSCT. I never knew what star struck was but I was immediately hit with it and my mind went blank.  He was so passionate about his work. You could tell by how he explained everything in such understandable detail. All the things I had learned about MS suddenly went blank and he turned into my new teacher. I listened intently as he explained HSCT and sudden platelet drop and soon he said something magical. He said he believed HSCT would benefit me. He accepted me as a patient and he even discussed my treatment with my MS specialist. I was floored. I was relieved. I was in such shock that when he asked me if I had any questions, my mind was empty. I had some questions but really wasn't ready.  Usually at appointments like these, I have a list of questions and at the end of the appointments, I go through each one quickly but this appointment I hadn't do...