Dr. Burt's Clinical Trial for RRMS Part 2

I am so excited. I have just been told that Dr. Burt thinks that I am a possible candidate for the study at Scripps. I have been terrified that this is too good to be true but it is. I feel so relieved. I may be able to finally put this all behind me or at least be able to get back to life for a while rather than this sick joke I have been living. I am so happy.

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The Mobilization to the Transplant - 7/24/23 to 9/15/23

7/24/2023 We are going to leave for San Diego soon and my anxiety is starting to surface. Today I feel impatient. I just want to get this going. I woke up last night around 2 AM with my arm, from elbow to wrist feeling like I had a rubber band wrapped around it. I don’t know why this happens, but it seems like it happens most when I am really tired, or I don’t eat well earlier that day. It might be an incentive to be better at rest and food intake, but I hate it. I wake up and I am unable to get back to sleep leaving me more exhausted until regardless of the symptoms I finally fall asleep. Honestly, I am hoping a lot of these things will improve or disappear completely with HSCT but I am not naive enough to rely on it. I will just be happy if the MS goes into remission. I would love to wake up without worrying that a new symptom will mean an MS relapse. I am exhausted of MS and I haven’t had it as long as so many others have. 7/26/2023 - Hilton, Gun shots??? Tomorrow is th...

June 3, 2020 - Hangover?

June 3 - 5, 2020 I woke up and I just didn’t feel right. I feel weak and uncoordinated. I drank last night so maybe it's just a hangover. I usually drink every night so it could be that I'm dehydrated. I can push through it and I am sure tomorrow I will feel better. I will hydrate and if that doesn’t work, maybe have a hair of the dog. I need to quit drinking. This is ridiculous. Symptoms Weakness in both legs and arms Poor balance and coordination Uncomfortable Trouble walking and moving Tired

Dr. Burt's Clinical Trial for RRMS Part 4 - Better Late than Never

Today was my consultation with Dr. Burt. I kept thinking at least you are going to meet him. You are going to meet the pioneer of HSCT. I never knew what star struck was but I was immediately hit with it and my mind went blank. He was so passionate about his work. You could tell by how he explained everything in such understandable detail. All the things I had learned about MS suddenly went blank and he turned into my new teacher. I listened intently as he explained HSCT and sudden platelet drop and soon he said something magical. He said he believed HSCT would benefit me. He accepted me as a patient and he even discussed my treatment with my MS specialist. I was floored. I was relieved. I was in such shock that when he asked me if I had any questions, my mind was empty. I had some questions but really wasn't ready. Usually at appointments like these, I have a list of questions and at the end of the appointments, I go through each one quickly but this appointment I hadn't do...

My MS/HSCT Journey

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