I feel like a bomb just fell on my head. I just talked to Dr. Burt's nurse who told me that Dr. Burt doesn't think I would be a candidate after all. I cried. I am devastated and just feel beyond defeated. I will just have to try Mavenclad and if that doesn't work I will go down to Mexico and get HSCT there. Tonight, I give up though. I just don't understand. He still wants to consult with me. I told her that his time is valuable and that if someone qualifies for his trial then I don't want to take up any more of his time. His time is precious, especially to someone worse off than I am. She insisted that I meet with him and talked me into it with a virtual appointment. Even the word deflated is an understatement of how I feel. I feel absolutely gutted and bled out and tomorrow is my birthday. 😞ðŸ˜
7/24/2023 We are going to leave for San Diego soon and my anxiety is starting to surface. Today I feel impatient. I just want to get this going. I woke up last night around 2 AM with my arm, from elbow to wrist feeling like I had a rubber band wrapped around it. I don’t know why this happens, but it seems like it happens most when I am really tired, or I don’t eat well earlier that day. It might be an incentive to be better at rest and food intake, but I hate it. I wake up and I am unable to get back to sleep leaving me more exhausted until regardless of the symptoms I finally fall asleep. Honestly, I am hoping a lot of these things will improve or disappear completely with HSCT but I am not naive enough to rely on it. I will just be happy if the MS goes into remission. I would love to wake up without worrying that a new symptom will mean an MS relapse. I am exhausted of MS and I haven’t had it as long as so many others have. 7/26/2023 - Hilton, Gun shots??? Tomorrow is th...
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